METabolic Health, Lifestyle, and Risk of Co-Occurring Health Conditions in Down Syndrome (MET-DS) – (Hartley)

The METabolic Health, Lifestyle, and Risk of Co-Occurring Health Conditions in Down Syndrome (MET-DS) study is part of the NIH INCLUDE Project (INvestigation of Co-occurring conditions across the Lifespan to Understand Down syndrome) and its …

Exploring Menopause and Caregiving Experiences of Mothers of Children with and Without developmental disabilities (Columna)

Are you a mother between 35 and 65 years old who is the primary caregiver of a child (with or without a developmental disability such as autism, Down syndrome, or other conditions)?

Understanding why individuals with disabilities continue to be left out of health research

Individuals with disabilities face significant health disparities, yet remain underrepresented in health research. There is substantial evidence that individuals with intellectual and developmental disabilities are systematically excluded from health research, even when it involves a condition that disproportionately impacts them.